The Egyptian Registry of Cardiothoracic Surgery
Sunday 16th of November 2014 is a remarkable day denoting the beginning of active full electronic registration of adult cases benefiting from heart surgery at Ain Shams University Hospitals. Six months later, this was followed by registration of paediatric cardiac and thoracic cases as well. Actually more than one thousand five hundred cases are registered in our server and we hope to include cases operated upon at Ain shams specialized hospital and all affiliated centers. Our automated registration uses the well known data base Redcap that was offered to the scientific world by the reputable Vanderbilt University and research centre. To date, more than 200 thousand research projects have use RedCap for data registry in 94 countries (http://project-redcap.org). We have acquired this official license, not only to register our cases but with the intention to build up a base for a national registry for cardiothoracic surgery.
We offer our license to all our colleagues to register, access and analyze their results online; using a computer, a tablet or simply any smart phone. In order o reach this aim, we have met and discussed with our colleagues in Kasr Eleini, National Heart Institute, Alexandria, Elazhar, Menoufia, Tanta, Benha and we proposed the following:
1- To construct a special online sector and a file for each department to record their cases using the same sheet that we have tested during on the 2000 cases during the last year.
2- To sign an agreement between all participating departments to describe their EQUAL rights and obligations to share the benefits of the Egyptian Registry of Cardiothoracic Surgery ERCTS.
3- To elect a National Committee to design a chart and to run ERCTS for non-renewable 3-years period.
The foundation of a national registry does not mean that every department will stop having its own registry and loose its privacy but it is mend to give every one of us the opportunity to benefit from the huge collected information not only to publish but to sort out the “missing” Egyptian guidelines and recommendations. Each department is invited to elect the person in charge of the registry and to send us the e-mail address and we will create their own special file for data registration.
Dr. Ahmed Hassouna
Admin of the Egyptian Registry